Happy Thankgiving! Today is more than just a day to put ourselves into a self-induced Tryptophan coma and watch football... while those are worthy pursuits, today also has another very special meaning for our family. We have so many things to be thankful for, but Today, Thanksgiving Day, marks 5 years that Sam has been seizure free!
Whooo Hoooo.... Now stand up and do the happy dance!!!
To be perfectly honest, I don't remember the actual numerical day that year, but I do know that it was Thanksgiving day so we mark the occasion on what ever day Thanksgiving falls on. So among many, many other things we are so very thankful for Sam's continued seizure-free status.
Years ago we got the devastating news that Sam had Infantile Spasms, a rare and severe and life threatening form of epilepsy. I believe that although his prematurity and extra chromosome have largely impacted his development... it was the Infantile Spasms that robbed him the most. So today we are thankful for another year without seizures...for one less battle that Sam has to fight, for one less medication that he has to take and for all the progress that he has made despite all the land minds that he has stumbled upon. Truly Amazing! WTG Sam!
****and OMG did you notice that Sam is wearing his glasses!!! Don't mind that I cropped the arm splints out of the picture that keep him from ripping them off his face and twisting them into a rumpled ball of titanium, no don't mind that.... just focus on the positive.... HE IS WEARING HIS GLASSES AND SMILING!****
2 comments:
From the very first moment that we found you all,through the miracle of the internet,we have been amazed and inspired and we are so very thankful to have stumbled upon Sam and his story, for he is our beacon of hope.And although Zoey has one more land mine of her own to cross,we know the miracle of the gift of finally finding seizure free days.We are forever grateful for them and for your incredible son.Thank you,today and always.
Oh wow! Hey Rae! I came across your blog and was so excited! I haven't seen you in a long time! Sam looks great! His glasses are SO cute and YAY for being seizure free!!!
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